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Chronic Illness: Diagnosing a Family
As you know by now, my life forever changed 3 years ago, but I think it changed for the people around me even more.
I had to change my everyday routines to accommodate and adjust to my chronic illness. This meant the life of everyone close to me and around me had to do the same. This change brought on some anger and resentment. Why should their life have to change so much? They didn’t sign up for this. What about them and their feelings?
I see what my illness has done to the people around me – how what happened to me has also happened to them, and sometimes knowing that is more than I can bear.
I have a 15-year-old daughter, and she should be out having fun and doing stuff with her friends and going to the mall. She should be out being a teenager, but she spends most days helping me with the house and taking care of me. The worry and burden she carries around with her is more than she should have to, but she does it with such grace.
We often forget that someone has to pick up where we left off. When I am sick, someone still has to cook and take the dog outside. And if I can't make it to work, someone has to cover my shift.
For people with surgical hypoparathyroidism like myself, we may have been generally healthy leading up to the surgery making this drastic change even harder to deal with. My family was told this surgery was going to be a great thing, but less in 2 months after it, I almost died and I, and they, have never been the same since.
Our family outings came to an end, and most of my time was spent trying to do simple everyday things. I was no longer the mother and friend I was.
Even the most solid of foundations can crack under so much pressure.
To me managing this disease is more about the people around me. It’s about keeping up a sense of normalcy for them while trying to get well again. I know there is no going back to those days before the surgery that changed all of our lives, but I am determined to make all this sacrifice, theirs and mine, amount to something meaningful.
‘Til next time, C
Disclaimer: I have received complimentary Cal-EZ as a thank you for sharing my story. All opinions about Cal-EZ are my own.
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